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Health Care in Appalachia

Ohio State Researcher Hopes ‘Generational’ Approach Can Help Reduce Cervical Cancer In Appalachia

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Women in Appalachia face some of the highest rates of cervical cancer in the country. They are also among the groups of women least likely to receive cancer screenings. 

The Ohio State University Professor Electra Paskett has dedicated much of her career to understanding the reasons behind why women in Appalachia are more likely to contract and die of cervical cancer. 

This year Paskett and her colleagues received a multi-million-dollar grant aimed at cervical cancer prevention. The team will be working with medical providers in 10 health systems in West Virginia, Kentucky, Ohio and Virginia to implement a multi-pronged cervical cancer prevention program. It will include helping women quit smoking and aims to increase the number of women who get screened for cervical cancer and receive the HPV vaccination.

West Virginia Public Broadcasting’s Brittany Patterson spoke with Paskett about her work. See below for an extended version of the interview.

BP: What initially drew you to studying cervical cancer in Appalachia?

EP: When I moved to the Ohio State University in 2002, I saw a map of the incidence or the death rates actually, of cervical cancer and white women and the Ohio area especially the Appalachian area was identified as one of the highest areas in the country for death rates for white women is cervical cancer.

BP: So you definitely had some ideas going in as to what might be leading to the high levels of deaths from cervical cancer in Appalachia, the first five years of your research here, were focused on figuring out what those were. Tell us a little bit about what we’re seeing.

EP: So when we started the study, again, we wrote the grant in 2002. There were three factors that were related to cervical cancer it was tobacco use, lack of pap screening and HPV infection. So what we started out to do in the first five years was really qualify all of those, and we established the prevalence of smoking and actually try to get women to stop smoking. We looked at the uptake of pap smear screening, and we did an intervention to increase the uptake of pap smear in women who were out of guidelines. The third project focused on quantified the prevalence of HPV and high-risk HPV in the population, which we were able to do.

BP: One of the things I found really interesting was there was some concern that the vaccine people often knowN as Gardasil, that prevents certain types of HPV, that that may not be as effective here. And you looked into that specifically, what did you find?

EP: We thought that because women in Appalachia had experienced a lot of stress, mainly from the socio-economic conditions as well as depression, that would affect the immune system, in that once given the Gardasil vaccine, they wouldn’t be able to mount appropriate immune response. And we did not find that. We found that even women who have experiencing high levels of perceived stress, we found that women were still able to mount a strong immune reaction to the vaccine. So we were very relieved by that findings.

BP: So in 12 years of research, we now have a better understanding of why we see more women in Appalachia facing cervical cancer than in the US. What comes next.

EP: So what we’re doing is we took all these factors and we’re working now with clinics in four Appalachian states. So they’ll be West Virginia, Kentucky, Ohio and Virginia. And we’re working with 10 health systems. And we’re going to be implementing a prevention program in those health systems that will focus on tobacco cessation, cervical cancer screening and HPV vaccination. And we’ll be teaching the providers and the clinics, how to offer that to their patients, so that their patients can get all the aspects of cervical cancer prevention and that it will not only focus on the individual woman, but it will focus on their family members, both their children and other family members who might smoke for example. And so we call it a generational family-based intervention delivered by the clinic.

BP: It sounds like doctors and healthcare workers are really crucial players in trying to reduce cervical cancer.

EP: They are. Healthcare providers and the entire clinic staff are integral players. You know, when you ask people, why did you stop smoking? or Why did you get a mammogram? Anything like that. It was health behaviors. The number one reason is my doctor told me. So, people really look to their healthcare professionals, to give them advice about what they need to do to improve their health to stay healthy. And the doctors need to be taught how to deliver those messages, and how to help their patients do what their behavior is. It was simple to say, Oh, you need to stop smoking. Well, thank you very much, but how am I supposed to do that? And that’s what we’re going to be teaching the clinics: how to help their patients do that.

BP: This is a problem that is is really an all cancer, in general, is really challenging to solve, and especially on the prevention side of things, looking toward the future, what is sort of your hope and specifically in Appalachia, the barriers that we see here are those things that your research says we might be able to overcome.

EP: So that’s a really good question. And I’ll you know, a lot of the factors that impede people stopping smoking or getting screening exams is related to social determinants of health and, and how do we impact the social determinants of health and I’ll give you this example of a couple of them that clinicians have told me. Transportation. A lot of times it’s hard to find transportation to get to the clinic because we don’t have transportation services in rural areas and this condition said the best thing he said we don’t have ruber which is rural Uber. We don’t have that. And so transportation is a real problem. It really is. And we have to look for innovative ways to address that. And the second problem he told me was communication. And we see that that all the time that, you know, the rest of the world thinks that there’s no digital divide, well, there is a digital divide. I go to one clinic, and as soon as I turn off the highway, I lose cell service. So there is a digital divide, you have to embrace that. And you have to be able to figure out ways to communicate with patients that don’t necessarily need the cell phone. We use patient navigation a lot. And the navigators, they work for the patients. They identify, why can’t you come in for this Pap test or why don’t you want to come in for the Pap test, and then they can work on each individual barriers to obtaining the recommended care. It almost takes a village, but the issue is that you should not be blaming the individual patient for doing a risky behavior or not stopping a risky behavior, you have to dig deeper and find out why is that person doing that or won’t do that. And then you have to identify the root causes and deal with the root causes.

This article was originally published by West Virginia Public Broadcasting.

Appalachia Health News is a project of West Virginia Public Broadcasting, with support from Marshall Health and Charleston Area Medical Center.

Appalachia

A Regional Focus on Health Care, Community by Community

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Understanding Appalachia requires coming to grips with the complexities and challenges of rural healthcare.

It means understanding that addiction isn’t just an opioid issue, as methamphetamines make a comeback in our communities. It means understanding that health goals reflect a Maslow’s Hierarchy of Needs chart from one community to the next, and that how we define wellness is as diverse and place-based as other forms of Appalachian culture. It means understanding that there are no one-size-fits-all solutions in the creative ways that our communities tackle addiction, vaccines, mental health, access and affordability.

With support from Jim and Alexis Pugh, we hired a part-time editor/reporter for developing this beat. We’d like to introduce him to our readers and invite story pitches for tackling this topic together.

— 100 Days in Appalachia

Introduce yourself to the 100 Days audience. How does your background inform your perspective on health and health care issues in Appalachia?

I’ve been covering rural health throughout the Southeast for some years now. Appalachian born, in the mountains of Western North Carolina. I began writing about health care on a regular basis in 2008 with a series of articles on the breakdown of the mental health care system in North Carolina. I then began to more fully appreciate the complexity of health care issues and the range of repercussions of the decisions we make societally about health care.

I worked for a couple of years under a grant to cover rural health issues in North Carolina, and that job allowed me to spend a lot of time on two-lane roads – those roads William Least Heat-Moon coined the “blue highways” for the color in which they appeared on old Rand McNally maps. I’ve since been doing the same work as a freelancer, from the Finger Lakes region of New York to the Mexico border. I love driving those roads, realizing that I’m now somewhere I’ve never been before, then arriving at my destination and exploring how the issues this particular community is grappling with are the same and different as others elsewhere.

I’m looking forward to now returning my focus to Appalachia. I divide my time between Nashville, Tennessee, and Carrboro, North Carolina. I make the trek between those two cities every couple of weeks, and whenever I’m headed west and begin the climb up Old Fort Mountain or headed east and hit Pigeon River Gorge, I feel the tug. It’s less than a hundred-mile stretch, but it’s so distinctly Appalachia.

With 100 Days, I’m psyched to reorient along a roughly north-south axis, unfolding this region that ambles from Schoharie County, New York, to Kemper County Mississippi. Granted, much of this work will be done from my desk in Nashville or Carrboro. But I’ll always be looking forward to that next excursion.

Of course, not all of Appalachia is rural. I do enjoy Appalachia’s metropolitan areas, love discovering them anew, and look forward to further delving into their particular health care issues and successes.

Urban or rural, I’m intrigued by the role that place plays in the health care issues communities face and in their outcomes. I’m so looking forward to witnessing Appalachia.

When people see that we’re launching a health vertical, it might seem like we’re late to the game, that any number of outlets already have a strongly established focus on issues in this area. In what ways do you hope to lead the conversation about health in Appalachia?

Appalachia is facing some considerable health care challenges. In addition to the rising costs of care, rural communities are experiencing diminishing access to services, including hospital closures, and difficulties in recruiting health care professionals. Rural and urban communities alike have been particularly hard hit by opioids.

But Appalachia isn’t a monolithic region, and there are nuances to these issues from one sub-region to the next, from community to community. While underscoring shared concerns, I intend to draw out those distinctions. I most especially want to bring attention to the particular ways in which communities are finding solutions

When I write that I’m from Western North Carolina, I capitalize the “W,” as those in the region commonly do – because beyond identifying the region geographically, “Western” is an integral part of a proper noun, denoting cultural distinctions. I could ramble on about what those distinctions are – the libertarian instinct, etc. My point is that place matters. Murphy, North Carolina, in the far southwestern corner of WNC, is 355 miles from Raleigh, the state capital.

There are four other state capitals closer to Murphy. To assume that all North Carolinians share a sense of place, an identity, would be a mistake. I want to explore the contours of geography and culture, and how they shape health, health care, attitudes, practice and policies.  

I intend to report on the challenges individual communities are facing and their responses to those challenges, and on decisions that the federal and state governments make and the outcomes of those decisions – whether to expand Medicaid coverage, for example, and the implications of that decision.  

Are there any specific topics you think media outlets outside of the region do a bad job of covering here or that have perpetuated stereotypes of the people in Appalachia? In what ways do you hope to challenge those views?

I think there’s a perception that Appalachia is waiting for a handout, that people in the region are expecting the federal government to solve all their problems. I hope to help counter that narrative.

The first piece I wrote for 100 Days was titled “New Report Cites Economic Woes, Addiction and Optimism in Appalachia.” It was about the results of a survey conducted by the Robert Wood Johnson Foundation, National Public Radio and the Harvard T.H. Chan School of Public Health titled “Life in Rural America.” Those results underscored the loss of jobs and the scourge of addiction. But the researchers also found that rural Americans are largely optimistic about their future, placing their faith in a shared sense of community. I described how that sense of community is expressed in Moorefield, West Virginia.

I strive to take a solutions-oriented approach to my work. I’ve written about the closures, mergers and acquisitions of hospitals and the ripple effects they have on communities. That’s certainly an issue today in Appalachia. In reporting on these transactions, I’ve described how communities have responded – at times, rebelled.

I intend to tell the stories of ground-level, multi-fronted responses to the health care challenges Appalachian communities are experiencing.

The focus outside, and inside, the region, in terms of covering health in Appalachia, is largely focused on the opioid epidemic. In what ways do you hope to shine a new light or further the conversation around this topic?

I refer to my answer to the previous question: solutions. Whenever possible, I intend to report on solutions.

Recently, I attended a listening session hosted by the Appalachian Regional Commission in the small town of Wilkesboro, North Carolina. The objective was to discuss workforce issues related to the opioid epidemic. Participants brainstormed job-placement strategies and how communities can engage substance-abuse treatment programs, recovery initiatives and other services. They shared information on available resources in the community. People had driven up to three hours to attend – health care professionals, business owners, social workers, elected officials, academics, law-enforcement officers and plain-old concerned citizens. It was an impressive display of solution-oriented community resolve.

I’ve reported on naloxone initiatives, needle-exchange programs, law-enforcement assisted diversion programs and health care professionals assisting mother and child in alleviating the effects of neonatal abstinence syndrome, addressing the stigma attached to medical-assisted treatment. I’ve ridden along with a peer support specialist who helps former inmates in recovery and others who assist those exiting the criminal justice system.

I intend to remain attentive to programs focused on the treatment, care and recovery of those with substance-use disorders and on the prevention of addiction, but with an eye toward how we are solving these problems in our communities.

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Health Care in Appalachia

Moving Care Upstream: Appalachian Community Health Workers Take on Diabetes. And Get Results.

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Roger Cisco is a fairly new patient in the Williamson Health & Wellness Center’s community health program, which serves some of the clinic’s most high-risk patients for diabetes, cardiovascular disease, and/or chronic obstructive pulmonary disease (COPD). Cisco, 56, was in an on-the-job automobile accident and suffered permanent spinal damage, leaving him paralyzed in his arms and legs. Kelly Browning, Cisco’s community health worker, helps Cisco navigate the many complications he faces, while trying to continue to manage his diabetes. Photo: Anna Patrick/100 Days in Appalachia

Kelly Browning doesn’t wait for Lyle Marcum to come to the door. She knocks and then pushes the glass door open, like she’s been there many times before.

Lyle stays where he is, sitting on a brown love seat, the TV on, and he calls for his dog, Lyla. “Get over here!” She’s running, excited, back and forth, her collar jingling until Kelly finds a leash, connects it to Lyla and slides the rope’s handle over a closet door knob.  

“New plan for you,” Kelly laughs. She’s wearing scrubs, but her outfit only describes a portion of the tasks she regularly has to do. As a community health worker for Williamson Health & Wellness Center in Mingo County, West Virginia, Kelly is assigned to 29 of the primary care center’s sickest patients. Most of her patients have more than one chronic disease, or comorbidity, and almost all of them have diabetes.

For two years now, Kelly has been working with Lyle, a former truck driver who hauled coal and mine equipment for most of his life. Since he was diagnosed in 1996, Lyle has spent the better part of two decades with uncontrolled diabetes. For a long time, he didn’t take the drugs doctors prescribed, and he didn’t eat the way they told him to, but he didn’t see any immediate consequences. So he carried on the same way he always had, working until he retired in 2007.

But Lyle’s luck ran out. “Eventually, stuff starts falling apart,” Kelly said. Lyle lost sight in his right eye. He’s now considered legally blind. And he had to have the top quarter of his right foot amputated, losing his toes. But with Kelly’s encouragement and consistent accountability, Lyle’s checking his blood sugar regularly and he’s taking his medications at least most of them.

“They’re death on diabetes,” Lyle said of Kelly and her team. She’s hoping he’s right.   

—–

Kelly’s a certified nursing assistant, but if you ask her advisor, Jerome Cline, her most important qualification is that’s she’s called the hills and hollers of Mingo County home her entire life. Kelly has known many of her patients for years. She knows how hard it’s been to find work since the coal industry’s decline in the region, she’s been touched by the opioid epidemic just like too many of her neighbors, and she cares about what happens to her patients.

Diabetes is just one of the many battles her patients face. Type 2 diabetes is considered a public health epidemic throughout the United States, but the disease is especially prevalent throughout lower-income communities in central and southern Appalachia, especially in states like West Virginia, Mississippi and Alabama, which currently lead the nation (1 – 3) in rate of occurrence. One in two West Virginians, for example, have abnormal glucose levels.

The community health worker program, the reason Kelly’s knocking on Lyle’s door every week, is one of the ways that the region is trying to fight back. It’s a new version of a well-known, widely used model that employs community members, without requiring a medical background, to support the health of others. The Department of Family and Community Health at the Joan C. Edwards School of Medicine at Marshall University, located in Huntington, West Virginia, is leading the program’s implementation. The program targets high-risk patients that have diabetes, cardiovascular disease, and/or chronic obstructive pulmonary disease (COPD) in rural areas throughout Appalachia. Rather than relying on regular doctor’s visits to treat diseases like diabetes, which are largely impacted by a patient’s daily decisions, the model moves care upstream into the homes of patients to create opportunities for intervention on a weekly basis.    

Community health workers have been working across the world, especially in rural, underserved areas, for decades, said Dr. Richard Crespo, researcher and professor at Marshall’s Department of Family and Community Health. Crespo and his team worked with Duke University to secure grant funding to launch an initial pilot program in 2012 at four health centers, which included Williamson Health & Wellness Center.

The pilot at Williamson focused on 130 high-risk diabetes patients. Within a six-month period, patients reduced their hemoglobin A1C levels by an average of 2.5 percentage points. Rather than using daily glucose readings to track a patient’s sugar management, A1C monitoring offers a much more accurate snapshot by showing average blood sugar level over the previous two to three months.

“If you were a drug company and you dropped hemoglobin A1C by .6 percent, you’d have a multibillion dollar drug,” Dr. Dino Beckett said in a 2018 interview. He’s a physician of osteopathic medicine and the CEO of Williamson Health & Wellness Center.

Dr. Christopher “Dino” Beckett, CEO of Williamson Health and Wellness Center, left, walks with Democratic presidential candidate Hillary Clinton during a tour of the facility in Williamson, W.V., in May 2016. Photo: Paul Sancya/AP Photo

Due to Williamson’s initial success, Crespo has continued working to secure grant funding through public and private sources to expand the program across the region. The program currently includes 29 community health workers across 13 primary-care centers that are helping to treat 650 high-risk patients living in 27 counties across West Virginia, eastern Kentucky and southeastern Ohio. And based on early results, the majority of patients have been able to make significant improvements to their health.

Crespo’s hopeful this model can offer an alternative, effective path forward for a region that is becoming increasingly sick.  

—–

When Craig Robinson started working in Appalachia in the ‘60s and ‘70s to help coal miners with black lung receive medical care, diabetes was around, but it didn’t stand out as a serious public health problem, Robinson said. He’s now the executive director of a primary-care provider in West Virginia.

A lot has changed since then.

Today, more than 30 million Americans, 9.4 percent, have diabetes, according to the American Diabetes Association, with nearly 95 percent experiencing type 2 diabetes, with a disproportionate number living in Appalachia. Diabetes is a slow building disease largely influenced by lifestyle choices over a long period of time — diet, exercise, stress management and so on. Genetic variations also combine with diet and exercise habits to contribute to a person’s overall risk.

If there’s too much glucose in the blood due to a high-glycemic diet — eating large quantities of food with high frequency that cause blood sugar levels to rise like carbohydrates and sugar — the body eventually develops insulin resistance, according to the National Institute of Diabetes and Digestive and Kidney Diseases. And when the body becomes resistant to insulin, it then needs more of it to help glucose enter cells and to keep blood glucose levels down.

“The American diet has become very high in sugar, of course sugary drinks contribute to this,” Robinson said. “We have a very high glycemic diet, which means that our diet tends to make our blood sugar rise and that’s what causes diabetes.”

The Center for Disease Control and Prevention tracks diabetes rates per county throughout the U.S. In 2011, the CDC labeled a 644-county area in the southeast as the “Diabetes Belt.”

To qualify within the belt, counties located in the southeast had to have at least an 11 percent or greater prevalence rate, higher than the national average. Comparing the Diabetes Belt with the map of Appalachia — which spans 420 counties in 13 states from southern New York to northern Mississippi — 232 counties are located within the Diabetes Belt, according to a 2014 report released by the CDC. Every Appalachian county in Mississippi qualified. West Virginia, the only state fully located in Appalachia, had 48 of its 55 counties qualify. It currently leads the nation in rate of occurrence with 15 percent of its population considered diabetic and another 35 percent qualifying as prediabetic.  

Residents living in rural, distressed counties throughout Appalachia are 1.4 times more likely to have diabetes than residents of non-Appalachian counties, according to a 2010 report published by the CDC. To identify “distressed” counties, the Appalachian Regional Commission, a partnering federal organization, examines poverty rate, the rate of unemployment and per capita market income over a three-year period of time.

In rural settings, there are many factors that create barriers to healthcare, ranging from geographic isolation, lack of transportation, and decreased health literacy, according to a 2016 report in the West Virginia Medical Journal.

There’s an association between poor health and low income,” Crespo said. “And for many of the people whose condition is out of control, it’s because of what’s happening in the community.”

—–

When Kelly Browning receives a new patient, before she can start setting health goals, she has to do two things: first, assess her patient’s needs. And second, earn his or her trust.

Cline, the clinical lead for Williamson’s community health worker program, often comes along for the initial home visit. He’s a nurse practitioner and certified diabetes educator, but said there’s no reason to start spouting off how many carbohydrates a diabetic can have with each meal if he enters a patient’s home and sees only a can of stewed tomatoes in the cupboard.

The thing we have to do when we find it, is address it,” Cline said of food insecurity issues that patients may be experiencing “Because if we don’t address the food shortages, it’s not going to matter.”

This Thursday, Nov. 29, 2018 photo shows Williamson, W.Va., seen across the border from Kentucky. Photo: Tyler Evert/AP Photo

In Mingo County, where the coal industry once supported a booming economy, a quarter of residents live in poverty, and the life expectancy rate is one of worst in the nation, according to the Institute for Health Metrics and Evaluation.

Because Kelly is a longtime member of the community, she knows the nearby churches and food pantries to call to get her patients connected to more reliable food sources. She also works with a rural bus service to ensure they have transportation to and from their doctor’s appointments. And because she knows that healthier options are often more expensive, rather than asking patients to overhaul their entire diet, Kelly often works with them on portion control to decrease their carbohydrate and sugar intake.

Across the 13 healthcare providers currently active in the program, community health workers have done everything from helping a patient who was sleeping on the floor obtain a bed to organizing the construction of a wheelchair ramp to help another patient easily enter and leave his home.

“When it comes to somebody’s well being, what is too much?” Kelly said.

To ensure comprehensive care, Kelly and her fellow community health worker, Aletta Hatfield,  meet with Cline and the program’s overseeing RN, Melissa Justice, once a week to discuss patient care. It’s one of the aspects that makes this community health worker model unique, Crespo said. By placing community health workers on a care coordination team, they don’t have to be experts in medicine to be able to offer comprehensive care. And even on days that they don’t meet, Kelly can call Cline or Justice to ask small questions she doesn’t know the answer to.

“What the community health worker needs to know in our model,” Crespo said, “is what the patient needs to know. So if a patient needs to know how to do their own glucose monitoring, then the community health worker needs to know that.”

Out of the 650 high-risk patients currently enrolled in a community health worker program throughout central Appalachia, 323 of those patients have diabetes. And so far, Crespo said, 54 percent of diabetic patients have been able to lower their A1C levels by an average of two percentage points, which is very significant in clinical terms.

But it’s going to take more than lowering A1C levels to ensure that this kind of work can continue and grow.

—–

Currently, grant funding is the make or break between having or not having community health workers, Crespo said. Some health centers, after seeing initial results, have made their own investment to expand their number of community health workers beyond their grant’s support.

Since 2017, Crespo and his team at Marshall have led quarterly meetings with insurance providers to share results of the programs. Three payers have signed on with select health centers, including Williamson Health & Wellness Center, to develop a model for payment during a temporary test period.

“All payers will say ‘Yeah, primary prevention saves us money, but what they look at is their bottom line at 5 o’clock. And it’s the [reduction in] ED [emergency department] and hospital visits that bring the cost down,” Crespo said.

The American Diabetes Association released research in 2018 reporting the total cost for treating diagnosed diabetes patients rose from $245 billion in 2012 to $327 billion in 2017.  

During Williamson’s pilot program, emergency room visits decreased for diabetes patients by 44 percent and overall hospital stays were reduced by more than 30 percent, according to Crespo. They haven’t averaged, yet, how much money community health workers are already saving payers by reducing hospital visits, but Crespo is hopeful that if these trends continue, and if more payers sign on to the model, community health workers like Kelly Browning won’t ever have to worry about job security.

—–

Kelly Browning checks Lyle Marcum’s blood pressure during her weekly visit to his apartment in Matewan, West Virginia on May 14, 2019. Because Browning checks Marcum’s vitals during every visit, she was able to respond immediately when she found his blood pressure to be higher than normal. Photo: Anna Patrick/100 Days in Appalachia

Shortly after Lyle Marcum became one of Kelly’s patients, he peeled a piece of tape off of the bottom of his left foot. Except it wasn’t tape. It was skin.

For months, Kelly treated the wound. But it kept spreading and growing, until eventually he was forced to have the leg amputated slightly below his left knee. Because her patient load requires her to travel throughout Mingo County, Logan County and even crossing the border into Kentucky, Kelly couldn’t make it to Matewan every day to check on Lyle, who lives alone, during his recovery process.

To help with the days she couldn’t visit, Kelly walked into the Matewan Sheriff’s department to ask that someone check on Lyle regularly. She made friends with a young woman that works at the town’s water department to get her to bring food to him. She had the senior center, just a few hundred yards away from his apartment, provide him meals. She even had her own mother stopping by to bring food and offer company.

“You just become whatever they need from you,” Kelly said. For Lyle, that often looks like gentle and sometimes not so gentle encouragement to keep going.

“Me and him have been in some knock down drag outs,” Kelly said.

“I won’t let him give up.”

This story was co-published with Spotlight for Poverty and Opportunity, a nonprofit, nonpartisan site featuring commentaries and original journalism about poverty and mobility. Follow us on Twitter @povertynews. Read the story on their site here.

Anna Patrick is a journalist based in Thomas, West Virginia. A former reporter for the Charleston Gazette-Mail, her work has appeared in the New York Times and CNN’s Parts Unknown. Raised in Appalachia, her work explores the lives of folks who call these mountains home. 

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Eula Hall’s Mud Creek Clinic: Kentucky’s ‘People that Help People’

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At 91, Eula Hall still goes to the Mud Creek Clinic, now the Eula Hall Health Center, each day to help care for patients in her rural Kentucky community. Photo: Taylor Sisk/100 Days in Appalachia

Six of Eula Hall’s 10 full siblings lived into adulthood. Her family was among the more fortunate.

Growing up in rural Appalachian Kentucky, Eula has witnessed poverty; she lived it. She remembers regularly seeing children with staph infections that would peel their skin away.

Her mother knew to use disinfectant, Eula recalls today, seated at the command post of the health care clinic she founded in the little town of Grethel on the banks of Mud Creek.

The Eula Hall Health Center in Grethel, Kentucky. Photo: Taylor Sisk/100 Days in Appalachia

But most didn’t. Most had no names for the preventable conditions that befell their families, let alone effective cures. There were no health care professionals to minister to them in their rural Kentucky communities. Home remedies – turpentine or kerosene, for example, administered both externally and internally – only worsened these afflictions.

Eula could never abide such misery; from childhood, she was driven to alleviate it. So in 1973, with a $1,400 donation and two local doctors as volunteers, she opened the Mud Creek Clinic here in this Floyd County community of 1,500. Today, it’s part of a network of clinics providing quality, accessible health care.

‘It’s Not Living’

Eula Hall was born on Oct. 29, 1927, in nearby Pike County. It was coal mining country then as now – though not nearly so now as then.

Eula’s dad, L.D. Riley, farmed, felled trees and fathered 20 children, 11 with Eula’s mom, Nanny Elizabeth Riley, his third wife. She’s the last of those 20 still living.

When Eula was a girl, her mother would take her to sit with a sick neighbor, just to be there, to help out, “and I would see things that would keep you awake.”

“Tuberculosis was rampant. Pneumonia – you didn’t know what it was because you didn’t have a doctor. You’d get a toothache and your jaw would swell up and get infected. You’d see people die.”

“You’d wonder, ‘Who’s next? Who’s next?’”

Eula watched her mother nearly bleed to death in childbirth.

“You ain’t got no life,” Eula says. “If you’re living like that, and every day you’re scared, every day of your life you live in fear that this will be my little brother, my little sister – it’s not living.”

Then, of course, there was the slow death of the mines. In her chilling ballad “Black Lung,” Hazel Dickens laments: “Cold as that water hole down in that dark cave/Where I spent my life’s blood diggin’ my own grave.”

For Eula, the memory of black lung is a rattle in the night.

Her father never owned a car, so the kids walked wherever they went. “We would go to the neighbor’s house and play with the children or help the mother break up beans or whatever needed to be done,” she recalls.

Returning home in the dark, they’d pass people sitting on their porches. “You’d hear them cough and you might see the glow of their cigarette. You’d hear them wheezing, trying to get their breath. And it would be coal mining. They had black lung. They couldn’t sleep. They had no electricity, no air conditioning, no fan – they were sitting outside trying to breathe.”

“Both of my husbands were coal miners,” Eula says. “My brothers were coal miners. My brother-in-law got killed in the mines. My brother got his back broke in the mines. My sons – I had three sons that were coal miners. Scary.”

In the late 1960s and early 1970s, she served as president of the Kentucky Black Lung Association. She’d trained previously as a VISTA volunteer.

“I said, ‘If there’s going to be a war on poverty, there’s plenty of things to fight about, and there’s plenty of people to fight for if you can organize.’ I wanted to make known everything people was suffering from.”

She was a member of the Eastern Kentucky Welfare Rights Organization. Jesse Jackson came to Mud Creek. She drove Ted Kennedy around in her SUV. Mitch McConnell. Bill Bradley. Alongside Bishop Desmond Tutu, she was presented with an honorary doctorate from Berea College.

Through it all, her number-one priority was health care: access to services, attention to black lung, clean drinking water (she launched the Mud Creek Water District). Education was next.

“All the way down the line,” Eula says, “there were major, major problems that needed to be dealt with.”

An Ambition Fulfilled

Eula remembers how in the rural community of her youth, people built their homes without the benefit of  heavy equipment to level the land. The houses were constructed on slopes, the front porches on stilts.

She recalls the day a neighbor woman was climbing to her porch when a step broke, a 16-penny nail piercing her ankle. “She took tetanus and died. She died and left six little children.”

“I can remember them coming back – they lived close to where we lived; you could see their house from ours – and I can remember the day of her funeral. The little children come back and they laid down on the porch, and they cried.”

Eula Hall. Photo: Taylor SIsk/100 Days in Appalachia

“One shot probably would have saved her,” Eula says. “She didn’t go to the doctor; didn’t have money; no car. And it always stayed in my mind. We’re supposed to be living in the land of plenty – and people suffer like that?”

That experience, and countless others, drove her to effect change.

The first iteration of Mud Creek Clinic was in a rented home on Tinker Fork, but Eula soon recognized the need for more space. So she moved her husband and five children into a two-bedroom mobile home and converted their three-bedroom house into a six-examination-room medical facility.

In 1977, Mud Creek Clinic joined with Big Sandy Health Care, a nonprofit that operated a clinic in nearby Magoffin County. Big Sandy is today based in Prestonsburg, the Floyd County seat, and serves five southeastern Kentucky counties spanning the Appalachian foothills: Floyd, Johnson, Magoffin, Martin and Pike. The partnership provided Mud Creek with access to federal funds and a wider network of health care professionals.

In 1982, the clinic burned to the ground, a suspected act of arson. Eula set about to rebuild it.

The Appalachian Regional Commission put up $320,000; a radiothon, raffles and soup-bean suppers were held; Eula stood in the middle of the road with a gallon collection bucket; and donations arrived, she says, from half the states in the nation and the United Mine Workers Union.

The morning after the fire, Eula set up office on a picnic table under a willow tree. Staff and patients arrived; health care was provided. Among the missing essentials was telephone service to call prescriptions into the pharmacy. So Eula contacted the telephone company, explained the situation and requested that they come out and install a phone.

Where would it be installed? Install it on this tree here beside me, she instructed. The phone company folks paused to ponder. You put telephones on poles at mine sites, she reasoned, you can put one on a tree at a health care site. The telephone was installed.

“It was that kind of determination that nothing, nothing, stops us from seeing the patients,” says Big Sandy CEO Ancil Lewis.

“I tell that story when we have a little bit of snow and some of the staff wonder if we should close,” he says. “Or if we have a power outage at a clinic or something. ‘Should we close?’ I remind them of Eula’s determination to continue to see patients.”

‘Finance or Finagle’

In most respects, things are better today in this region than when Eula was a child. But well-paying jobs – jobs that might buy you a little security, maybe allow you to afford to see a doctor – are still few and far between. The needs were, and remain, considerable.

Floyd County ranks 114th of Kentucky’s 120 counties in health outcomes; the other four counties Big Sandy serves are in the bottom 20 percent. Four of the five counties have family poverty rates above 30 percent, compared with Kentucky’s 21.5 percent and 16.7 percent nationally.

Big Sandy Health Care is a federally designated community health center, the mandate of which is to provide health care services to low-income, uninsured people on a sliding-fee scale.

For this rural community, like most in the country, transportation is a major barrier to access. It’s therefore critical to provide as many services as possible under one roof. Eula has always embraced that imperative. Big Sandy’s resources have allowed her to advance it.

Now called the Eula Hall Health Center, the clinic in Grethel provides primary care, behavioral health care, dental and optometry. There’s a pharmacy, a food pantry and a free-clothing center. Telemedicine is also being introduced to access psychiatric care at the University of Kentucky.

“It’s certainly part of Eula’s mission to bring health care to where it’s needed and to provide health care to anyone irrespective of their ability to pay,” Lewis says. “That’s something that Eula’s always been a strong advocate for. And she’s been, I would say, a master at finding ways to get care for people, finding ways to either finance or finagle.”

Eula has a memory from childhood of a doctor’s office with a little red sign in the window that read, “All outpatient services strictly cash.”

“Well, “ she says, “people didn’t have cash. My parents didn’t have money.”

“I was always imagining having something like what we’ve got now, like Big Sandy Health Care, where people can go in, and nobody kicks you out because you’ve got no money.”

Committed to Community

Eula Hall has been fighting this war for a lifetime. Trust that she’s fighting it still.

“At my age,” 91, “people might think, what can she do?” she says. “But you don’t know what I do,” and it’s plenty.

She no longer drives, but her four-wheel-drive is still on the road, transporting patients to and from the clinic and elsewhere as needed. Each morning, she convenes with staff member Linda Adams to assess the day’s challenges. Who’s going to need a ride into the clinic? Who may not have their co-pay? Who’s hungry? This is holistic health care.

And that telephone remains by her side. Eula knows who to call when a neighbor’s having trouble collecting their benefits or a fundamental need proves elusive.

The memories are still vivid, of the constant fear of death in these faraway hollers. Many on staff at the clinic were raised in this region. They know the area well and have committed to serving it.

Robin Holbrook is a long-time employee of the Eula Hall Health Center. Photo: Taylor Sisk/100 Days in Appalachia

“This clinic has been more of a community center than anything,” says Magoffin County native Robin Holbrook, a physician’s assistant who’s worked at the clinic for nearly 30 years.

Holbrook emphasizes the importance of understanding the culture, and of then helping convey a healthy-living agenda throughout the community: “Diabetic education and proper nutrition, immunizations – preventative medicine has always been the key component of rural health.”

“It takes a real unique person to work here,” Eula says. “Just anybody wouldn’t want to work here. It’s hard work, long hours and you’re on your own. But we’ve been blessed. We’ve really been blessed.”

Regarding her own health, she says: “I’m glad to be alive. I feel good. I’ve got some medical problems. I’m a diabetic. But I don’t have major problems to be my age. I tell you what I’ve got that I thank God every day for: I’ve still got my mind. I know what I’m doing, and I know how to do it.”

Eula arrives at the clinic at 8 o’clock. She says it’s the encounters with patients who need her help that push her to get up each morning. “That’s what gets me here every day.”

“We’re here,” Eula attests. “We’re going to take care of these patients. We’re going to take care of them the best way we can, however we can.”

“We’re just people that help people.”

Editor’s Note: This story originally identified the worker’s rights organization Hall volunteered with as the East Kentucky Worker’s Rights Organization, but has been updated to reflect the name of the organization at its incorporation, the Eastern Kentucky Welfare Rights Organization.

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